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Blog Index
 megana... |
 JB2689 |
confus... |
 jachase |
jlojag78 |
 Wendy07 Wendy's
The journety of Frontal lobe surgery and the "so-far" success.
How I went from seizure free, to my seizures recurring during pregnancy to finding the best facility to help me, to surgery and seizure freedom!
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emirahs |
 easydu... |
Finally50 |
missyk... |
abl126 |
paulqueen |
supermom3 |
look4y... |
vondamont |
annlata |
 ABraden7 |
 Lauren... |
alltru... |
 roxiba... |
 jenhow... |
 KATHS2 |
 2 seiz... |
BrainTrip |
 knbreeden |
kristenam |
 irish2... |
JARRET... |
 violen... ...A good magician never gives up his secrets
Where I write my thoughts about my husband's various conditions.
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Blog Activity
 crashl... New - Dementia??
My FIL called up today and is taking the kids for 2 weeks. Ummm...are you sure you want all of them at the same time?? He said yes and will pick them up next week.
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 phunn New - Independence Day.... boy that say's it all...
Merriam-Webster - not subject to control by others; not requiring or relying on something else. A definition, yes, but oh so much more.
I fight Tooth and Nail for every of ounce of my hard won independence. I can drive now. I know what it is...
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ABraden7 New - Good week
My neurologist said things are going pretty well. However, I will have a sleep study. I am still trying to keep focusing on what can be done--and not what I can't do. I am really taking time to enjoy everything I can and not focus on what doctor...
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 kroiz |
megana... New - Me + Epilepsy = hate.
I have decided that I loathe seizures.
I hate the fact that I have been smacked in the face with the fact that I am epileptic with a 2 by 4. And then beaten to the ground....
I hate being drugged up.
I hate my Dad thinking I'm faking. I...
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crashl... New - Seizures and Technology
I had a seizure in the grocery store. It wasn't a full blown complex partial but pretty close. I kept partial consciousness the whole time and remember just standing in front of the cheese wondering if I was really going to go out. It was a weird feeling...it's...
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 SassyM... New - Counting THe Days On One Hand
Holy crap its getting close!!! I can count the days till surgery on one hand!! I am not sure if thats good are bad. I think it's good I mean I am ready. I am not second guessing things...which is REALLY good. But HOLY CRAP! You know what song keeps...
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 steven... |
 Sophs6... |
 kaitly... New - Emergency VEEG
So, I don't have long to write but Kaitlyn has to go to St Louis tomorrow morning (for those who aren't familiar that's about an 8 hour drive from us). So we are going to leave in the middle of the night to get there in time for our 11:00 AM check in. She...
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JB2689 |
 ROCKNROLL New - SPIZ ISN'T A DOCTOR. I WAS JUST KIDDING. THOUGHT I BETTER CLEAR THAT UP NOW!
SORRY IF I MISLEAD ANYONE. SPIZ IS A PERSON LIVING WITH EPILEPSY, OR FRIEND LIVING WITH EPILEPSY. I ASKED SPIZ ABOUT THE SEIZURES I HAVE BECAUSE SHE SEEMS TO KNOW MORE ABOUT E. THAN ANYONE! HOWEVER, SHE DOESN'T HAVE ALL THE ANSWERS, AS SHE SO KINDLY TOLD...
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 mindyk |
 Adz New - GOODBYE RUBY TUESDAY . . .
HI BLOG FANS, THAT LITTLE REQUEST WAS FOR OUR VERY OWN JAN, YOU GO GIRL!
SPIZ, WHERE CAN MY WIFE GET A PAIR OF THOSE BAFFIES? DO YOU KNOW THE STOCKISTS IN SCOTLAND? IS THIS A BLOG OR THE UNHINGED RAMBLING OF A GREY-HAIRED OLD MAN? HEY-LESS OF THE OLD!
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 banffgirl New - DEALING WITH LIFE WITH EPILEPSY NEVER GETS EASIER
I HAVENT WRITTEN A PERSONAL BLOG IN A HUNDRED YEARS, SLIGHT EXAGARATION, LOL. OK, SO HERE GOES.
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confus... New - Had an EEG today....
So, I had my first EEG today. Just a short one, about a hour or so... I don't know how it went yet. Hopefully I will hear something soon. All I know is that I felt awful during parts of it...
The part with the strobe light was awful!! It gave me the...
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ROCKNROLL |
crashl... New - I Got It!!!
I got the embroidery machine! It's beautiful! And I made a design without totally screwing it up. I messed up the tension once but you'll never that I messed up unless you look carefully. I'm not complaining though. First attempt turned out really nice.
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kroiz New - Monday again
I didn't hear from the doctor today and I was so busy the only time I had to call was after 5. Problem is, even if I did they'd call me back whenever they were planning to anyways. Im assuming it is ok, no hypsarrythmia. That is the main thing I worry...
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Adz New - Good game for Spain.
HI FLWE, ESPECIALLY JAN AND SPIZ FOR THE BLESSINGS. FOR THOSE OF YOU NOT INTO SOCCER - SORRY! - BUT THE GERMANS, WHO ARE USUALLY SUCH A GREAT TEAM, WERE MINCE! THERE'S NO OTHER WAY TO SAY IT, PURE MINCE! SPAIN WERE ABSOLUTELY BRILLIANT AND DESERVED...
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seizur... New - News Headline: Local implant could buzz sufferers and beat seizures
ARTICLE FROM THE MELBOURNE HERALD SUN NEWSPAPER, JUNE 17 th
Hello everyone,
I stumbled across this article titled: EPILEPTIC BRAINWAVE and couldn't wait to share it with you.
The Melbourne...
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crashl... New - My Experience On Lamictal
To keep on a more epilepsy related blog I thought I'd share my experiences with Lamictal. I would hope that it helps someone else who is looking into this medication. I'm not a doctor. Always talk to a doctor about side effects and issues that you...
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crashl... New - Hi. I'm Crash And I'm An Enabler...
Ummm..I made it to sleep around 4am but I got up at 10am so 6 hours isn't so bad. I got dragged to see Wall*E today. I was going to stay home but Mr. Crash wanted to go to Lincoln as well promising lunch. Food. Who can resist food? Remember..I...
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ROCKNROLL New - DR. SPIZ, LOOKEE HERE..WHAT KIND OF SEIZURE IS THIS?? LEFT A PICTURE 4 U. CAN U FIND IT???
OK, I THOUGHT I WAS HAVING STROKES ALMOST EVERY DAY. I THOUGHT THAT BECAUSE I AM REALLY AN EXPERT AT HAVING STROKES, BUT NOT KNOWING WHAT IS HAPPENING TO ME!
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banffgirl |
kroiz New - Jessica looks nothing like me
I decided to write about something other than seizures, or diagnosis of rare syndromes, and just share something that happened today.
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Adz New - SATURDAY IS A GOOD DAY, AND FRIDAY WASN'T TOO BAD EITHER.
HI FLWE, HAD SOME GREAT NEWS THIS WEEK-END. THIS WEEK I FOUND OUT THAT A BENEFIT THAT HAD BEEN UP FOR REVIEW AND THEN TAKEN OFF ME, HAD BEEN REVIEWED AND REINSTATED. THIS MORNING I REALISED I SHOULD CHECK MY BUDDIES (I HADN'T REALISED THAT I HAD TO...
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crashl... New - Do Mosquitos Get Your Meds?
Sigh. It's 3am and I can't sleep. That's when you start thinking of the dumbest things. Like realizing you are a mosquito magnet and have bites all over you. Then you wonder if they get your lamictal in their system do they fall over dead a few seconds...
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ROCKNROLL |
 Crystal11 |
violen... New - The grouch
It's a life changing event, you know, to have them change the medications up on your loved one.
No, seriously hear me out here.
It is a life changing experience, the medical community doesn't seem to understand this. They think "ohhh more...
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crashl... New - Guilty As Charged
Mr. Crash did say I could have the embroidery machine. WooHoo! Now my self doubting hits in. Am I wanting this because I'm bipolar and hypomanic or do I truly want it? It's both. He said yes. That's all I need for now. I'll keep thinking about...
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kristenam New - Dizziness and Trileptal
For the past week, I have been having severe dizziness. My mom says it's not my medicine failing, but I think it is. I have been through three medication failures, and I don't wanna have another one. Next month I am going to Austin, Texas to have testing...
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kristenam New - Dizziness and Trileptal
For the past week, I have been having severe dizziness. My mom says it's not my medicine failing, but I think it is. I have been through three medication failures, and I don't wanna have another one. Next month I am going to Austin, Texas to have testing...
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jachase New - Heat a Trigger?????
I am peti-mal epileptic and, last summer, I was having an almost DAILY seizure and my parents and I figured it was from the heat. Anyone else???? How did you deal with it?
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kaitly... New - Had a bad day, I suppose....
Well I suppose that I was a little angry yesterday when I was blogging and I didn't mean to make anyone upset by it or cause any problems but I just felt the need to voice how bummed I was with how the site has become and just the lack of support and I was...
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Adz |
kroiz New - Topamax
Im thinking the Topamax is helping those myoclonics. They're not completely gone but she had very few last night and this a.m. Guess we'll see when they do the video feed EEG today. I have to keep her up so we're getting there early to do this in case...
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phunn New - Disappointed... something to think about...
Kaitlyns Mom's latest post has really given me something to think about.
I started blogging in Jan 2008. I was in a dark place and I felt very much alone. I couldn't tell anybody how I felt and really didn't even care to try. To much explaining...
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ROCKNROLL New - A SIMPLE PHONE CALL, A CHANGE IN SUBJECTS, TOTAL DEVASTATION PUNCHES ME IN THE GUT, IT WILL NEVER STOP FOR ME
I WAS JUST CALLING MY CASE WORKER TO TELL HER ABOUT A CHANGE IN DOCTORS AND I WAS TELLING JOANNA ABOUT HOW WONDERFUL IT FELT TO FINALLY HAVE SOMEONE IN MY FAMILY LEARN WHAT A TRAUMATIC BRAIN INJURY CAUSES. THAT IS AS FAR AS I GOT BEFORE THE DEVASTATION HIT...
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SassyM... New - Staying Calm...Thank You :)
Hi agian. First of all I wanted to thank all of you who were kind and responded to my last blog you words of encouragment ment a lot to me. Sometimes the smallest sentances can be a huge help when your having a rough day.
Things are still an...
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 jayenm... New - Big Jerks- Simple Little minds!
I wrote a blog the other day- it was the morning after my daughter had a clonic tonic seizure in my car. That day I had gone into her work to explain to her boss that Courtney would not be in and would be there on her birthday to work. She was so hostile...
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crashl... New - Missing People
Spiz and Colina would never forgive me if I left. Dayna too. They'd probably come to my house and threaten to steal my sewing machine if I left. Or hold it hostage. They have stuck around through thick and thin through this site.
Scratch..didn't...
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mindyk |
kaitly... New - Been a long time... disappointed....
Well it's been a long time since I've done a blog... I've just spent a while going through and reading everyone else's blogs/posts and what not.... and I have to say I am utterly disappointed with what this site has become. Granted most of you probably don't...
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kroiz |
jlojag78 |
crashl... New - Dumping The Blog
Ummm...where is everyone?? I go to chat and no one is there. We all taking a break? Even when I do a quick check of th list, only 12-15 people are online and I don't know anyone. Wow. Are the dynamics of the group changing? The site? I miss...
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mindyk |
ROCKNROLL |
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