|
|
I need to know if you think medication is necessary for BRE. My son has had two bad seizures in the last two years and about 7 mild ones. The neoro wants to place him on treleptal. I don't know what to do and I am worried one of these bad seizures may really harm him. Please help!!! Thanks
Recent Comments on this Discussion
Was just on line and saw this forum. Our son who is now almost 9 has also been diagnosed with BRE although his EEG is not classic for it the doctor says his symptoms are. He has had 6 seizures since Dec.2003 when he was 6 years old. The last 3 were in a 2 1/2 week period recently. We are also not on medication at this time but after these last 3 episodes our doctor sts he is leaning more toward starting him on Trileptal. We also struggle with the idea of medicating because our son is perfectly normal during the day. All of his seizures have happend during sleep and within the first 20 minutes of sleep. We cringe at the thought of side effects of the medication. We are now praying for a miracle so that we don't have to use medication. How is your son's condition now?
hi my son also has benign rolandic epilepsey, im not sure wether to medicate he has a seizure about once every 3 months,what was the outcome of yr son.
I would be interested to know too.
My son had his first seizure a week after his 4th birthday last year. 3 months later he was diagnosed with BRE and I was told no medication was needed and that I just needed a follow up with my family Dr. only.
He had 8 within a year's time, but then last month when he had a total of 7! I finally got a referral from my family Dr. for a Child Neurologist and we are having another EEG done right before Christmas along with a check up. The first neurologist told us we didn't need to do anything except wait for him to grow out of them. The child neurologist said he should have been seeing them since last year.
Do you go to a child neurologist for your son's BRE?
My son will be 6 in February.
Try this site. It gives some info about BRE and "How is it treated?"
http://www.epilepsy.com/epilepsy/epilepsy_benignrolandic.html
It does mention and I sure hope that your son will be one of the cases, that "In almost every case, the seizures stop on their own by age 15."
Wish you the best.
Bruce
My son is now 9 1/2 and has had these seizures for 2 years. I am worried that if I don't treat him he could get brain damage or die from one of these. My son does not want to take the medicine. He does not like blood test that are necessary. Most of his seizures are for 30 seconds and only involve the face twitching. Those 2 bad ones (july 02 and this past saturday) really scared me. Up until saturday we were ok with the not medicating decison.
We are still gathering more information and I am trying along with my son to make the right decision. Is there anyone out there whose child has had this and HAD outgrown it. Please let me know>>
Thanks
Natalie
Ron
Thanks for your response. You are probably right, I'm sure those people have moved on. Lets just keep our fingers crossed that its true about BRE.
Natalie
My son was diagnosed when he was 8 , he had 1 seizure and never had another one for a year, until this past December He is now 9, He started having them weekly and then a few times a week always in the morning around 7:00 Brodies would leave the right side of his body paralyzed after wards , he also had the face twitching. we medicated him when he had one during the day just standing in front of the fridge holding a carton of juice he was unresponsive until he dropped the juice , He told me the same thing happened in school... His Drs. put him on Tegretol 100mgs am and 100mgs pm....he has not had ANY SEIZURES SINCE, He has started eating better and has even gotten up to 55lbs
if you need anymore info please email me gormley_sharon@yahoo.com
sorry but this isnt my reply but its my name..
ide tell you a bit more about security issues but im outta here
GOOD RIDDENCE