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UPDATED: Sun, 03/02/2008 - 4:40am

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mommy_c
mommy_c

epilepsy and speech - what do you do for school??

my daughter's speech is GREATLY affected by her epilepsy (due to where the seizures are taking place in her brain.)  we have gone to ASL with her although she is still in speech once a week.  this has greatly helped her communicate - praise God! 

we are looking toward pre-school years now and are not sure where she fits school wise.  her seizures are not under control and although she uses ASL - she hears and understands things perfectly.

anyone else in this situation?  what have you done school-wise?  we will not be using the computer thing that would "speak" for her.

tia!

 

 

By mommy_c at Sun, 03/02/2008 - 4:40am | 60 views | 5 comments
speech, school

Recent Comments on this Discussion

My 3 1/2 yr old, Missy, goes to speech therapy at a local therapy clinic 3 times a week for 20 minutes each session, along with receiving speech therapy at preschool.  She goes to a special needs preschool that we have been involved with since she was 6 months old. 

The more you work with your daughter and her speech therapist(s) the better. And try to coordinate the therapies so that they work together and not against one another.

We're slowly working on introducing ASL into her speech therapy but it is slow going because she is also developmentally delayed and does not use her hands for much other than sticking her fingers in her mouth.

I hope you're able to get connected with the right people.  Just remember, little improvements are wonderful things. God bless and good luck!

MissysMom

Hi, my daughter is 5years old and is diagnosed with focal and secondary seizures since she was born. She has a speech delay and learning delay because of her siezures. She has been working with early childhood since she was 2 and half. This has really helped her. she goes to a regular preschool that offers tiny tots twice a week and also twice a week threw the early childhood speech thearpy. They have a speech therapy teacher in the room that works with all the kids and then one on one. It has really helped and also to get her ready for kindergarden!!! I also was very worried that she would be behind. She has advanced in her speech so much. So dont worry because every child is different and unique in there own way!!!! :) So as long as you as her mom stay on top of her speech and education and show that you are very concerned they are going to help you. I promise that... Also she goes once a week 30 minutes one to one with the hospital here in MN Gillette which has helped to. She is gonna do great dont worry. Best of luck to you and your daughter!! God Bless Email me with any other questions.

leashaydf

I have only been diagnosed for a year but have had speech arrests for several.  They are a little better in that I don´t stutter very rapidly anymore thankfully. (Think people thought I was crazy or messing about.)

My big seizures are under control but I still have a kind of strangled feeling and am unable to speak, this is only occasionally compared with b4, maybe 5 times a week for maybe only a couple of seconds at a time.

As a teacher it is a problem but usually I can kind of feel it happening.  Have patience and try not to be too anxious as your girl will pick up on it, the more anxious I get the worse it gets.

torian...

My daughter is in the first grade now, but was diagnosed with epilepsy when she was in preschool. She has had speech and learning problems. She was diagnosed with left frontal with secondary genrealized, she has been seizure free since 10/07/06, due to the meds she is on. She is on Trilepital. One of the major reasons she had speech problems were due to a mucus seal on the bottom of her tongue. We had that removed, and her speech improved, but with some little problems still. She has been moved to remedial classes for reading and gets tutoring for two hours two days a week.

starch...

Actually sometims after my daughter had a seizure she would not talk. She would move her head to yes an no, but could not speak for sometimes up to five hours. One time we were in the emergency room, and had to wait for her to talk before we were released. After talking ot her doctor, she said it is due to the lac of oxygen to her brain during her seizures. Her seizures always last for longer than five minutes. We have to give her disastat through rectal to stop them.

starch...

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