Thickened Cortex
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im 15 and im on trileptal, my seizures are well controled but i still have so many worries about my future. And i hate being medically dependent, it worries me too much. I have a scar in my left temperal lobe, so i was wondering if any one has had surgury done there and like how long the recovery time was, what are soem risks, how did it go, are you seizure free now, and just anything else you could share. It would really help, thank you.
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Hey Chelsea93. My name is Shawn. I am a Professional Nurse in the neurology field as well as a person with epilepsy myself. I have had epilepsy for over 22 years now and just recently, September 23, 2008, was told where my seizures were originating. My seizures start in my left temporal lobe as well. The only difference with mine and yours is that your basis is scar tissue and my basis is a smaller hippocampus on my left temporal lobe. I can maybe be a big help since I work with people who have surgery on this area of the brain alot, as well the VERY LARGE amount of research I have done and the neurologists and neurosurgeons I work with. I can tell you some of the risks are slurry speech, loss of short-termed-memory and a slight chance to lose long-termed memory. I am sure you know the basic risks as with other surgeries (infection, etc). I can say that with all the people we see go through the surgery, I have witnessed less than 1% of the patients having significant memory loss or long-termed effects (and most were elders). Nearly all the patients go home within two days of the surgery. We at least keep them over night just to watch for inflammation and infection. I know nearly all the neurosurgeons and neurologists tell me that the prime age for the surgery is from the ages of 13 to 25. One thing we have found out though is that the longer you sit and tolerate the epilepsy, the higher chance there is to have more brain damage due to more seizures and more time your brain is oxygen deprived. Luckily I am finally geting the chance for surgery, and I hope the same comes for you.
I, too, am having seizures in my left temporal lobe from a head injury ten yrs ago. I have minimal scarring and the neurosurgeon has told me that I am a good candidate for surgery. I'm currently on Topamax (which isn't covering all of the seizures) for complex partial seizures. Having been through the trauma of a head injury, my question is whether the surgery causes the confusion and disorientation of what I've already been through. That was horrid and as I consider surgery, it's something I need to know. Good topic, Chelsea!
My daughter just had left temp. lobe surgery in March.She did great and has not had a seizure since. She did not have too have much hair shaved. She was only in the hospital 2 days. We were very scared at first, but she did so well. It has changed her life for the better. She is 26 now and has had sz for approx. 10 yrs. She has just started to be able to drive again. Good luck, I hope if you have the surgery, it goes as well as hers.
Hi mamasaw. I believe i have talked to you before either here or in the chat room. Any way, I just read about your daughter and am very glad to here that she is doing well. I decided to have Left temporal lobe surgery as well yesterday. I will be having mine November 4th. I just turned 27 this past August and my seizures started 3 years ago in August 2005 (a couple of weeks after I turned 24). It took several EEG's and tests for two years before the doctor's were finally able to find out that they were coming from my left temporal lobe (via a Video EEG done at the EMU @ my local hospital) just last summer. I am confident in my neurosurgeon, but am still a litte nervous. In fact, when I asked him to see the images from my MRI, compared the differences between each side of my brain, and then even showed me exactly what he would be doing. Thanks to whom ever invented PowerPoint, I could see it very clear on the projector. if you don't mind me asking, what medications was she taking before and how much is she taking now. I am currently on 3 meds., 500mg Dilantin, 500mg Lamictal, and 2000mg. Keppra.
She is on Topamax 500 x 2 and Lyrica 250 x2. She goes back in Dec. and will start to wean off slowly one of her meds, probably Lyrica. She is so excited to get off the Lyrica. It seemed to affect her more than Topamax. After a slow weaning process, she should start weaning off Topamax till she is on a low maintenance dose. We were just talking today about her feeling so much better tonight at dinner. She has such a better attitude about life now. She feels like she has the best chance of the best quality of life now. It has made the most remarkable recovery. Best of luck to you. I know how scary it is, facing this. I will be praying for you and your family. Do you have a good support system? Are you on your own, or have a husband? I wish you the BEST of luck. Where are you having your surgery?