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Hi Everyone
I'm new to this and i'm going out of my mind
My husband had his first EVER seizure on july 5th, no family history, no injury, nothing, it just happened out of the blue. He had all the tests done and they all came back clear. The doctors told him it was probably a one off and would never happen again......
WELL...He had his 2nd seizure on the 27th october at 10:45pm, i called the EMS again and we went off to the emergency room, while in the emergency room waiting for a bed he had another seizure. I feel so sorry for him as he always bites his tongue and can't eat for days.
Anyway, the said it was generalized siezures and they gave him all the tests again and everything came back normal so far (waiting on eeg results).
They started him on 500ml x 2 of keppra a day. I have done all the research i can on this drug. Don't knowif i like it....
I was wondering if anyone on this medication or has a loved one on this medication notices that they have jerks or twitches while they are sleeping. My husband, since the last seizures and/or starting keppra has weird movements on the left side of his body, particularly in his arm along with some face twitching, he doesnt feel them and they don't wake him, but im very concerned incase he is having seizures while he is sleeping.
Any help would be very much appriecated as i have not had a night sleep since october 27th, i have to sleep once my husband goes to work, its not good.
Thanks
Denise
Recent Comments on this Discussion
I have had a 5 day sleep study-where I stayed 24/7 for 5 days with EEG leads glued to my head. Result, Restless Leg Syndrome RX requip and P-C- TLobe Seizures Rx Keppra. The doctors wanted me on numerous meds for depression, anxiety, etc. I told them NO-One med at a time! Keppra generic keeps the seizures under controle, but the REQUIP is a life saver for me. Jerking at night while sleeping would wake me and after going months without sleep, I was far more prone to seizures because I was always exhausted from lack of sleep! If I forget to take my 1mg of generic Requip, I will wake up from jerking. I take my requip and I sleep through the rest of the night. This is your hubands problem, but you will develope problems from your lack of sleep. Take care of each other and ask your family for help so that you can get caught up on your sleep( 3-5 nights) so that you are not fatigued. Best Wishes.
Denise,
It's hard to say if these jerks or twitches could be seizure related. It could be normal. If they happen frequent enough, I'd suggest taking a video of these episodes, if possible. I'm not aware of Keppra causing other types of seizures to appear. I certainly wouldn't hesitate to contact his doctor about what you're seeing.
And don't be afraid of everything that you read about Keppra. Keppra can be a very good anti-seizure medication. One thing that can occur is a change in behavior. Irritability and aggression has been known to occur. Studies have shown that B6 has helped. But don't expect this to happen. I just want to give you a heads up.
~Karen