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UPDATED: Fri, 12/21/2007 - 10:11am

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Developing My Seizure Plan 101

  1. Visit My Resource Kit and use the following tools to help you develop your seizure plan. Stop back frequently - we’ll be adding more over time.
    • My Seizure Plan
    • My Health Care Team
    • My Seizure Medicines
    • Tips for Seizure Observation
    • Instructions for Using Seizure Calendars
    • Seizures Calendars
      • My Seizure Event Diary
      • My Monthly Seizure Calendar
    • My To Do List
    • Questions For My Health Care Team
  2. Print out the My Seizure Plan and follow along as you work through each section. If you are missing information or don’t know what to do, write it down on your To Do List and Questions For My Health Care Team. Take these forms with you to your next office visit and ask for help to complete this.
  3. Once you complete the plan, ask your doctor to review it. You want to make sure that you have the information correct, especially the information on types of seizures and emergencies, doses of medicines, and how to respond to seizures and possible emergencies.
  4. After everyone has signed off on the plan, make many copies.
    • Keep one with you at all times – in your purse, pocket or wallet, or backpack.
    • Put one in a central place in your home.
    • Give one to people who are with you most frequently (if you feel comfortable with this).
    • If you are a parent of a child with seizures, give one to the school nurse so appropriate people will know what to do if your child has a seizure. Make sure that your child knows you are doing this and is part of the process.
    • If you or your child goes to camp or other programs where she may spend a lot of time, give a copy to the camp nurse, counselor, or person in charge. Again, make sure your child knows you are doing this and is part of the process.
  5. Review the plan with your health care team and family on a regular basis – at least once a year or as needed if seizures or your treatment plan changes.
  6. To start developing your seizure plan, click here.
  7. If this is your first time creating a seizure plan, read through the following sections for step-by-step help to develop your plan.

Continue to Organizing My Personal Information

Topic Editor: Steven C. Schachter, MD and Patricia O. Shafer, RN, MN.
Last Reviewed:5/25/07


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