|
|
Despite the fact that some articles and books have been published in Cuba dealing with Sudden Death, only three articles relate it to epilepsy (González Pal S et al. 1982, 2004, 2005). These articles include patients suffering from chronic psychosis and epilepsy hospitalized in a psychiatric hospital. In these patients, the following is observed:
In postgraduate courses on epilepsy for doctors, SUDEP is a topic that must be discussed by students. In Cuba, both radio programs and published newspapers for the general public have dealt with SUDEP. Doctors and other professionals who deal with patients suffering from epilepsy, and are familiar with SUDEP, consider it necessary to discuss this issue. But the topic is not dealt with in a similar way by all health staff (both doctors and paramedics). Therefore, as health professionals that work with patients with epilepsy, we aim to disseminate information regarding SUDEP in order to raise the general knowledge of the public and of other professionals on this issue.
Salvador González Pal & Erick González Delgado
Cuban League Against Epilepsy
Reprinted with the permission of Epilepsy Australia-the national coalition of Australia epilepsy associations and Epilepsy Bereaved UK.
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.
| Title | Posted | |
|---|---|---|
| Smoking marijuana and drinking | Feb 7, 2008 | |
| RESPECTING YOUR EPILEPSY | Mar 16, 2008 | |
| pregnancy-developmental delays with tegretol | Jan 19, 2008 | |
| Please Help Me: New To Epilepsy | Feb 15, 2008 | |
| thinking about surgery | Feb 1, 2008 | |
| Eyelid twitching | Feb 20, 2008 | |
| Loading, Loading, Loading.. | Jan 17, 2008 | |
| Epilepsy triggers? | Mar 20, 2008 | |
| can paint fumes trigger seizures? | Feb 9, 2008 | |
| Removed Epilepsy Jokes | Mar 16, 2008 |
| Title | Posted | |
|---|---|---|
| Please help | Nov 21, 2008 | |
| tinklestarling | ||
| What the hell happened to me? | Nov 21, 2008 | |
| paulqueen | ||
| How do I get Disability Status? | Nov 21, 2008 | |
| smfmontana | ||
| WHAT OFFENDS THE E COMMUNITY | Nov 21, 2008 | |
| E_Loner | ||
| Benign Rolandic Epilepsey | Nov 21, 2008 | |
| antcon | ||
| Shivers and Epilepsy | Nov 21, 2008 | |
| Andrew T | ||
| If I could change 1 thing on epilepsy.com it would be . . . | Nov 21, 2008 | |
| kdredske | ||
| this might be a stupid question but here we go! | Nov 21, 2008 | |
| whofan | ||
| Chat Help and Mentors | Nov 21, 2008 | |
| epi_help | ||
| Discrimination in the workforce | Nov 21, 2008 | |
| acswenson | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,326 | |
| epi_help | ||
| topamax and weight loss | 18,804 | |
| alexia mom | ||
| kepra | 18,590 | |
| brian mattingly | ||
| Possible cure for absence seizures | 15,422 | |
| pdl1 | ||
| Epilepsy and marijuana | 14,341 | |
| cjad234 | ||
| Sexual Side Effects | 12,544 | |
| George R | ||
| How exactly do aura's feel | 12,337 | |
| WendyBendy | ||
| MEDICAL ALERT I.D.'s | 11,152 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 9,869 | |
| spiz | ||
| electrical shock in head? | 9,312 | |
| Maggie | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| NOT INVITED TO SON'S WEDDING BECAUSE I HAVE EPILEPSY.......MORE THAN I CAN HANDLE | Jan 28, 2008 | |
| Epilepsy in gastric bypass patients | Feb 8, 2008 | |
| Well things had been going well. | Jan 22, 2008 | |
| 2 SEIZURES TODAY, GOING FOR 3? READ MALLY HOO'S ENTRY TODAY. SHE WAS TREATED AWFUL. | Feb 14, 2008 | |
| Crybaby | Dec 30, 2007 | |
| Me and My Shadow Jan 9, 2008 | Jan 18, 2008 | |
| Pink Nail Polish | Feb 3, 2008 | |
| seized by fear | Mar 6, 2008 | |
| feeling off | Mar 18, 2008 | |
| Life With Epilepsy | Jan 25, 2008 |
| Title | Posted | |
|---|---|---|
| TGIF Finally | Nov 21, 2008 | |
| IRobot | ||
| For Thursday | Nov 21, 2008 | |
| IRobot | ||
| Lost, alone, frustrated | Nov 21, 2008 | |
| confuzzed | ||
| Absence Seizures/Tuberous Sclerosis | Nov 21, 2008 | |
| Mally Mom | ||
| Loosing a child is the very worst thing that could ever happen to a parent!!!! | Nov 21, 2008 | |
| Angelicas mom | ||
| second opinions | Nov 21, 2008 | |
| hayley G | ||
| Cauliflower warm with spray butter | Nov 20, 2008 | |
| wenko | ||
| side effects of zonegran | Nov 20, 2008 | |
| martin21 | ||
| Sea Lice causing seizures | Nov 20, 2008 | |
| sdavis864 | ||
| OVERCOME WITH EMOTION, PROUD TO BE AN AMERICAN AND HUMBLED | Nov 20, 2008 | |
| ROCKNROLL | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| Inspirational Quote - My Own Personal Inner Thoughts | 7,911 | |
| Butterflygrl | ||
| my partial complex seizures | 3,827 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,607 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,442 | |
| JudiS | ||
| side effects of phenobarb. | 2,946 | |
| pksmom | ||
| Feeling Sick | 2,763 | |
| JBJ1984 | ||
| Tegretol XR and ANXIETY meds | 2,711 | |
| Butterflygrl | ||
| How can you tell if a sleep seizure happens? | 2,594 | |
| epl_controller | ||
| Nonepileptic "Events" vs. "Seizures" | 2,521 | |
| teft | ||
| TYLENOL, AEDs & SEIZURES | 2,497 | |
| cmscribbles | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Epilesy support for winners | Nov 10, 2008 | |
| bethkashenberg | ||
| Epilesy support for winners | Nov 10, 2008 | |
| bethkashenberg | ||
| Epilesy support for winners | Nov 10, 2008 | |
| bethkashenberg | ||
| Lets hang out in Colorado | Nov 5, 2008 | |
| kylesmom08 | ||
| Benign Rolandic Epilepsy -- Is it really benign | Sep 13, 2008 | |
| LaraHj | ||
| Epilepsy/any topic | Sep 4, 2008 | |
| TomII1000 | ||
| Parents Of Children With Epilepsy | Aug 31, 2008 | |
| zachsmommy | ||
| Can't Stop Them!!! | Aug 24, 2008 | |
| Amber28 | ||
| Conceiving with epilepsy | Aug 18, 2008 | |
| cukinha | ||
| Seizures after Weight Loss Surgery | Jul 26, 2008 | |
| meltingmama | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| My Milly Mops | Nov 21, 2008 | |
| sylvia scotland | ||
| My sister | Nov 21, 2008 | |
| klat0057 | ||
| Ways to get over prejudice | Nov 21, 2008 | |
| fiesta | ||
| One more struggling | Nov 21, 2008 | |
| Jackeline27 | ||
| It's My Life | Nov 20, 2008 | |
| CarolinaBrittany | ||
| My story | Nov 20, 2008 | |
| sanicay | ||
| Lindas episode | Nov 20, 2008 | |
| binkey16 | ||
| Newest phone call from the doctor | Nov 20, 2008 | |
| Gingersnap | ||
| Don’t Struggle on Account of Collateral | Nov 20, 2008 | |
| peterstochin | ||
| Temporal Seizure Disorder | Nov 20, 2008 | |
| lespicasso | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 1,874 | |
| kroiz | ||
| Seizure Cat helps unfold my seizure life! | 562 | |
| wenko | ||
| my story | 436 | |
| snoby | ||
| Always Have On Clean Underwear | 393 | |
| crashllama | ||
| Kelly's Life With Epilepsy | 376 | |
| kjcanada1979 | ||
| my brain has died a thousand deaths........... | 349 | |
| banffgirl | ||
| What My Seizures Are Like...... | 341 | |
| javaman | ||
| Crystal's story | 308 | |
| Crystal11 | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 296 | |
| karalyeva | ||
| How I found out I hade seizures | 279 | |
| HilaryWeinberg | ||
| View all Stories | ||
