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Forum Activity
 JinLondon New - Is it actually working????
Hi-
Ok. So I have started taking Lamotrigine about 1 1/2 weeks ago and have only had seizures since then (last one last Sunday) which is great considering I used to have around 5-6 a week before (Slowly increasing since February). Does this mean...
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 CC Ann New - 3year old with Myoclonic Seizures
My son was diagnosed on 12/5/2007 with Myoclonic Seizures. We have no family history on either side of our families that have Epilepsy, so this is all very new to us. So far this site has helped me a little.
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ibble New - Varying forms of tonic clonic seizures!
Hi,
I had what i usually call my "funny five minutes" last night, usually involves aura type feelings, shaking and crying. Balance goes and dosn't really return for a little while after and i usually find it hard to respond to others during...
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Greenw... New - Ahem! Shooting Silvery Spots - Turned to shooting headaches
16th June: Now I'm getting terrible headaches. SHort shooting pain that totally stops all thought and all actions...it happened 4 times over 3 weeks.
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rwolfe New - Are my seizures really that serious?
I am a 25 year old woman who was recently diagnosed with simple partial seizures. Apparently my symptoms (deja vu, confusion, disorientation, inability to write while having episodes, etc) as well as my EEG indicate that the seizures are originating in my...
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 Kathy781 New - How do I harden up to this?
Hi everyone! I have had seizures since I was 8 years old. I have the
Complex Partial type where I sometimes fall and sometimes lose bladder
control and they are uncontrolled and unpredictable. I have tried to
work but was fired because of my seizures. No,...
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 latinm... New - Struggling to gain control
My three year old son was diagnosed in October of 2006. I always sensed that something was wrong, but I had no idea that it would point to epilepsy. He has absence and myoclonic seizures. In the beginning he was having 60 plus seizures a day. He was first...
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 The_Dr... |
 desert... New - VNS has changed my life
HI all,
I have been on here with a story about my VNS about 3 or 4 months ago. But now it gets even better. I am at 2.25 amps. IT is running on a cycle of 5 minutes OFF and 30 seconds ON. That may soon change to 3 minutes off...
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 lspeakman New - New here, mother to a child with myoclonic seizures
My daughter just had been tested through an eeg. All the dr could tell me is that she has Primary Generalized Myoclonic Seizures. She also said that we have to have a referral to a neurologist. My oldest one is the one with the seizures, her father (we...
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pRushb... |
eb3226 |
 kevinmo99 New - Need support
I am tired of people even family members not listening to what i have to say. Always have tried to be good guy. Now on day 4 of not even my wife understanding how i feel. She felt it was more important to take a phone call than get me settled down. Do not...
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 jme New - hi and who has juevenile myo-clonic epilepesy
who is new here that has juevenile myo-clonic epilepesy please reply because I am new here and I just got it.
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avalon1 |
Tresma New - Child having behavior problems on Depakote
Help!!!! My 5 year old little boy was placed on Depakote a little over a month ago. He originally was also on Carbatrol which we have weaned him off of. He is currently on 125 mg sprinkle capsules. He takes 2 in morning, 2 in afternoon, and 2 in evening.
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rose0527 |
 defbase New - Epilepsy and Illegal drugs - experiences
Hi there everyone. Firstly I am in no way linked to the medical profession, and have no formal medical training or experience. I just thought...
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 Jennyr... |
Strawb... |
Strawb... New - Families And friends
I think that families, and friends are the most gifted thing in the world....
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 birdwi... New - epilepsy and "rage episodes"
hello,I'm wondering if anyone has any input or experience with this. My brother has epilepsy diagnosed in his early 20's. Seizures are mostly controlled by medication. However, he has episodes of extreme, nearly violent rage where...
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Susan1... New - Meds are not doing it's job
i've had epilepsey since i've been 10 years old. All though out my life i've been changed on med. It makes me go crazy. recently i have did go to the hospical for my epilepsy they check my medication level they told me they could not do anything for me cause...
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juliek... New - question about during my eeg
I am new to the forums and we are still in the air as to if I am
having seizures or migraines with associated anxiety attacks. An EEG was
scheduled and I had it done today. They did the strobe light and had me breath
heavy for three minutes. The tech...
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Newyor... New - Feeling very confused...
Hello,
I'm new here to the forum and I'm so glad there's a place like this now to talk about epilepsy. I started having seizures a baby. I was diagnosed with complex partial seizures. I went to kindergarten in a hospital because my seizures were so...
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EFNJyo... New - In Search of NJ Teens looking to help others...
Hello all -
The Epilepsy Foundation of New Jersey is searching for teens (18-24) to become part of a youth council. This youth council will reach out to teens who need support and help that maybe is beyond the understanding of a parent. This will be a...
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EFNJyo... |
wdm1967 New - Switching from Dilantin to Lamictal
I am 40, have been living with epilepsy for 33 years. After an initial few tries on a few different meds, found that dilantin completely controlled my seizures. Outside of 1 when i went through a growth spurt (med levels too low for weight gain), 1 when...
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 s_more... New - Good Friend w/Epilepsy just committed Suicide.
Hello, I am new to this site. My husband's really close friend, 28yrs old, (friends since first day of kindergarten) was diagnosed with Epilepsy a few months back. It was sudden, these seizures, and he couldn't drive, and he lived...
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lisab New - Deja vu
Hi, my name is Lisa and this is my first time posting. I am 39 years and a mother of two daughters. About 18 months ago, I had two experiences of deja vu. After the deju vu feeling passed, I had a strange feeling...
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dudett... New - epilepsy
new here so wanted to drop by and say hi...our daughter sufferes highly with stress, anxiety and has epileptic fits and at the moment is in hospital has been since week before xmas for recent seizures
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dmtbgt New - Teen Driving Insurance
Hi I'm not sure where to post this -- I might try another catagory too.
My son has JME and is fast approaching driving age. Is there anything I should know about car insurance and epilepsy? Do they charge extreme fees? Do you have...
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 Black.... |
Little... New - 24 hour EEG w 2 year old
Has anyone done a 24 hour EEG with a young kid? How did it work? Our last experience with a short EEG was such a nightmare (Owen flipped when she put the electrodes on his head and she made me pin him down, which made it worse and he pulled them all...
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 Donna ... |
 creepm... New - Red Bull
I am a student obviously and i drink a lot of Red Bull can that affect me and my meds?...
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Butter... New - Smoking cigarettes and seizures....
I've been a smoker for about 13 years or so now. I'm not a heavy smoker by any means, and I go through a pack every 3-4 days. I just wanted to find out from "other smokers" on this site or any non-smokers who even may know....Does...
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wmott1122 New - Characteristics of Gran Mal seizures
Hello, My son has simple partial, complex partial, and generalized gran mal seizures. He's been having more gran mals lately, the neuro says due to puberty. What I was wondering is do any of you who have...
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 Dragool New - Does anyone get tired after absence seizures?
So my absence seizures returned. Lame, I know. Does anyone feel tired after you have absence? I felt tired the rest of the day, but had taken a sedative my neuro prescribed me. However, I am thinking it is more than the sedative because I slept the rest...
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 stephs... New - Epilepsy and Demonic Possession...or something of the sort
Has anyone had problems with religious family members whipping out Mark 9 (the chapter where Jesus heals a boy who apparently is having seizures of some sort), then declaring that you must have demons in you, or you have spiritual unrest, or are somehow...
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 sophia... New - sophia hill's poem...."I HAVE EPILEPSY!!!"
I have epilepsy, what does
that mean?
Does it mean I’m a retard;
a spastic?
Does it mean it come and
goes as it pleases?
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JohnsWife New - Is Keppra making my husband angry?
About 3 months ago my husband (who was diagnosed with JME at 14 and is now 44) was switched to Keppra by his neurologist. He had been on Depakote ER for a number of years with pretty good seizure control but the side effects were...
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daffyduck New - How do you know if you have seizures
I have never known when I have my seizures, so unless someone tells me, I am none the wiser. THis is driving me crazy as I cannot give accurate reports to my neurologist.
Maybe I am having none?
Maybe I am having 20 a day
How can I confidently...
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xgi New - Howdy vets
Hi xgi here from michigan. I'm retired AF E6. I see we got a place for vets with epilepsy. I've had epilepsy for 20 years now after I was injured on active duty. Does anyone use VA nerou care?? like to chat with other vets to see how the handle their sezuires...
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sweetn... |
11ddebb New - Can epilepsy be related to bipolar?
Well, it's official...I've been diagnosed with temporal lobe epilepsy. So far, I've only had simple partial seizures. I get this strong deju vu and detached feeling, I can hear everything going on around me, and can move normally, but can only speak single...
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pattib New - Not sure about what happened to me.
My name is Patti, 39, never had a seizure before. BUT,, I was at the movies with my kids and my arms started jerking, my legs shaking, my head bobbing with tingling in my face. You know that head bobbing when you started dozing off and your head jerks,,...
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pattib New - Not sure about what happened to me.
My name is Patti, 39, never had a seizure before. BUT,, I was at the movies with my kids and my arms started jerking, my legs shaking, my head bobbing with tingling in my face. You know that head bobbing when you started dozing off and your head jerks,,...
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pattib New - Not sure about what happened to me.
My name is Patti, 39, never had a seizure before. BUT,, I was at the movies with my kids and my arms started jerking, my legs shaking, my head bobbing with tingling in my face. You know that head bobbing when you started dozing off and your head jerks,,...
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 spiz New - JAN! LOOKEE HERE!
JAN,
FOR SOME REASON I WASN'T ABLE TO POST ON YOUR BLOG. YOU DO KNOW HOW TO GET MY ATTENTION, LOL!!!
WHAT YOU ARE EXPERIENCING ARE SIMPLE SEIZURES:
http://my.epilepsy.com/epilepsy/seizure_simplepartial
YOU KNOW, THE ONES THAT ARE NOT...
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