Who has juevenile myo-clonic epilepesy
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To find a group or topic of interest, enter a username or keyword in the box below.
Get and stay connected with other epilepsy.com community members who share your interests, concerns and passions. Create a virtual meeting place and deepen your connections using the Community Event Calendars, Group Discussions and Shared Member Blogs. Below, you can see the most recent Groups, and the latest activity within the Group Discussions. Browse around and if you don't see a Group you are looking for, log-in and click "Start a New Group." Your Group can be open to the public or private (by invitation only). There is no limit to the size of your Groups or what topics your Groups are based on! If you are not logged in, register now! Learn more about joining and participating in Groups in our Groups Help Section.
Group Index
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 Epilepsy Innovation Summit May 2008
Notes and Discussions Inspired by the May 7, 2008 Epilepsy Innovation Summit in Boston sponsored by CIMIT and NIO
 | 1 | 4 | ||
 Northern Virgina Support Group
Looking for people in Northern Virginia (Parents/siblings/Patients) looking for Support Groups
| 1 | 5 | ||
Epi-teens
A Group for teens living with Epilepsy to share their experiences with others, and share advice with others
| 1 | 8 | ||
 | 1 | 4 | ||
 living with epilepsy and ASD....autistic spectrum disorder
this is a happy friendly group to talk about living with A.D.H.D/ADD, Rett syndrome OR Aspergers syndrome this is for anyone who you know has got any of these conditions
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 | 0 | 5 | ||
 Mormons Living With Epilepsy
This is where members of the Mormon faith can talk about how their faith in God and living in the Church has helped them deal with their epilepsy.
| 0 | 2 | ||
 | 8 | 26 | ||
Women and epilepsy
Women can deal with epilepsy in a different aspect than men. When it comes to the start of puberty to when menopase occurs. There are a numerous amount of effects that women can have due to hormones and becaus of childbearing. Due to this I wanted to start...
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 Wearable Seizure Detection
Our group will explore technologies and developments to enable a practical seizure detector that can be used in everday life
| 6 | 8 | ||
Anti-epilepsy treatments: What's new?
Pipeline Group discussion on new developments in epilepsy treatments (including drugs, devices, gene therapies, etc.), and their potential to reach patients soon.
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 Experiences with Simple Partial Seizures
This group is for people to share their experiences with simple partial seizures with others.
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| 0 | 4 | ||
 | 11 | 14 | ||
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 Epilepsy due to Viral Encephalitis (an Acquired Brain Injury~ABI~)
Epilepsy due to Viral Encephalitis
| 2 | 7 | ||
Spousal support group
to learn more about how others support spouses w seizure disorders , common experiences, offer help + hope
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 Antiepileptic Drug Screening
Discussion of preclinical models for screening potential antiepilepsy therapies
| 1 | 7 | ||
 | 9 | 26 | ||
Dating and Epilepsy
Men and Women ages 25 to 40 who live with epilepsy every day of their lives and are strong enough to survive
| 2 | 29 | ||
| 1 | 8 | ||
 Service Animals, Therapy Animals, and Pets
A group for those who rely on the human-animal bond to get them through the day.
| 5 | 16 | ||
 Living a life with Epilepsy
A place where people can come and talk about how they deal with their life on a day to day basis with Epilepsy
| 9 | 48 | ||
| 3 | 13 | ||
Bugs Today: epilepsy.com Website Feedback and Architects Group
Provide feedback and new ideas to make epilepsy.com a more effective resource
| 20 | 32 | ||
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Practical Living with Epilepsy Catalogue Project
A project to create a catalogue of products for safer living with epilepsy
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| 1 | 18 | ||
 Community Mentors
A group of community members interested in being volunteer moderators and mentors to users of my.epilepsy.com
| 9 | 23 | ||
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 O' Yeah Canada
A place for people in Canada to sort out medications, insurance, driving laws & more.....every where seems to be different
| 1 | 8 | ||
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Sample Group - Have a look at what you can do!
This Group has been started to provide and example of the new Groups feature and has links to the Help Section.
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Group Activity
 mystic... New - Gastic Bypass and Seizures ?
I had gastric bypass in 2002..all has gone well except for an ulcer that is cleared up. Loving it! Now I'm having seizures, one for sure, possibly a second and third one. Still being diagnosed. I'd like to hear more bout this subject. Never connected the...
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mystic... New - Gastic Bypass and Seizures ?
I had gastric bypass in 2002..all has gone well except for an ulcer that is cleared up. Loving it! Now I'm having seizures, one for sure, possibly a second and third one. Still being diagnosed. I'd like to hear more bout this subject. Never connected the...
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mystic... New - Gastic Bypass and Seizures ?
I had gastric bypass in 2002..all has gone well except for an ulcer that is cleared up. Loving it! Now I'm having seizures, one for sure, possibly a second and third one. Still being diagnosed. I'd like to hear more bout this subject. Never connected the...
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mystic... New - Gastic Bypass and Seizures ?
I had gastric bypass in 2002..all has gone well except for an ulcer that is cleared up. Loving it! Now I'm having seizures, one for sure, possibly a second and third one. Still being diagnosed. I'd like to hear more bout this subject. Never connected the...
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 Theresia New - PMT / PMS and seizures
HI to the other women.
I would be very interested to know whether other women have increased risk of seizures around certain times of the menstrual cycle....and any ways that others try to manage this...
For me, I am much more likely to have...
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 findes... New - generic?
My insurance just charged me for using the name brand instead of the generic of Lamictal. I've only found the generic in small doses. I take 800mg a day....anyone else found larger doses in generic?
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 neatsy27 New - Some times people are so dumb
I have been with my boy friend now for a year,we where going to be married but not now.his mother hates me and guess why ?becouse I have EPILEPSY she thinks I m going to couse him to much stress.And some days I dont fell well and cant go to family events she...
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 spiz New - Guess The Meaning...
Here's a game where we guess the meaning of acronyms made up by us. Please do not leave any that include the use of offensive words. Come on and join the fun!
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 IRobot New - music
I'm going to put a line from a song and somebody guess the song. Easy enough?
Here's an easy one to start:
"I want to hold your hand, i want to hold your hand, i want to hold your hand!"
1960's rock- British invasion, that really...
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IRobot New - Awful Songs
What is the worst song you've ever heard? The worst one I've ever heard would have to be a song by Billy Ray Cyrus called Achy Breaky Heart. It is very annoying, and the words are the same the whole time... My heart, my achey breaky heart... Ick...What do...
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 epi_help New - Time to do some research
Any famous songs, or not famous, about epilepsy and seizures? If so, share them here!
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spiz New - Chat Room Slang
There is so many slangs and acronyms used in the chat room. Let's see how many we can put here to help each other learn them. Make up some of your own too!
Please do not list any that are offensive. Thank you!
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spiz New - Medical Marijuana
I noticed marijuana as a seizure treatment is being questioned/observed again and thought this link quoting pros and cons might help.
http://www.medicalmarijuanaprocon.org/
It covers different conditions as well as epilepsy/seizures which I felt...
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 ninabva68 New - Kids with epilepsy
Hang in there. All the parents that have kids with epilepsy. We have to hang together. The rest of the world cannot really understand how you feel when you hold your little shaking kid.
That said we need to remember many kids out grown epilepsy....
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spiz New - 101 Things I Want To Do Before I Bite The Dust
It's normally 100 but I have to be different. Counting up from 1 or counting down from 101 name those want-to's. Keep up with your count as you add them from time to time.
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 emirahs New - My Story
The reason I joined this website is because my mother did. But looking around, I found very little support for children who are living with, or had a parent with epilepsy. I am grown now, as are my own children. My mother had seizures during my childhood,...
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 btoogood New - seizure free
hey there guys from a rough patch i have had a heap of seizures, but up untill november 26th last year till present i have been seizure free, the only problem is that i have heapes of side afects espically to my lamictal.
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Meliss... New - inexperienced group member; experienced epileptic
I browsed this group via google. It is really encouraging to find so many voices that share my disorder. I've had absent (sp?) seizures since age 8, and had my first grand mal at age 12. I've since had both types of seizures, and my doctor recently referred...
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spiz |
jadeda... |
IRobot |
IRobot |
Adz New - Our song. And forming the Big E Band.
OK, just for the sheer fun of it I want us all to nominate a song which we think could describe how we feel/think about our epilepsy, especially after a hard day, or looking back over the past year(s). Remember its just a bit of fun, so no strong disagreements. ...
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 warren7 New - Wireless EEG headsets - Gaming systems
The June 8, 2008 Sunday New York Times has a discussion of eeg based video game controllers.
Emotive Systems from San Fran has a 16 sensor wireless eeg headset that sells for $299. OCZ Tech in Sunnyvale, CA has a 3 sensor headband which captures...
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 ROCKNROLL |
spiz |
 roxiba... New - Hi
Hi i've had sps all my life but i didnt find out until 6 yrs ago. I know alot i've had 2 brain surgeries for it, but they still havent stopped. and now im having new ones
email me @ princessroxstar1991@yahoo.com
victoria
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Adz New - Our song. And forming the Big E Band.
OK, just for the sheer fun of it I want us all to nominate a song which we think could describe how we feel/think about our epilepsy, especially after a hard day, or looking back over the past year(s). Remember its just a bit of fun, so no strong disagreements. ...
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warren7 New - VNS Update at the Epilepsy Innovation Summit May 7 2008
VNS
Reese Terry, Cyberonics
Epilepsy Innovation Summit
May 7, 2008
Overview
- 70 years of research suggests VNS can interrupt seizures
- FDA approved 1997
- 50,000 implants todate’
Efficacy
- main effect seem to be a gradual increase in sz threshold...
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spiz New - Site Search
Let's see who reads the site, ranging from forums, blogs, groups and even members signatures. Quote a clue and see who can give an answer. Enjoy!
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bookbabe temporal lobe syndrome vs. temporal lobe epilepsy
I was just diagnosed with temporal lobe syndrome. My neurologist explained that it means that my symptoms are not severe enough to be diagnosed as temoral lobe epilepsy. However, I am already taking Tegretol for another condition (bipolar type II), so...
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 Ancien... New here and questions about cats (and legal stuff relating to)
Hi all. I'm new to epilepsy.com but have been posting at BrainTalk for years if y'all know it. I'm also on MySpace.
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Chriss... |
kieran Epilepsy
I was diagnosed with epilepsy just over 2 years ago. my neurologist diagnosed me with juvenile myoclonic epilepsy a few months ago. i have been taking lamictal for just over a year and a half now and my dosage has been increased several times over that timespan....
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 gypsyg |
 shawnd... Still Rapping
i rap almost every sunday in my church, and tell people not to give up on God. if i haven't given up on him for the fact that i am epileptic then why should they. Everytime i have a seizure, i rap for nothing less than 3 minutes. It keeps me going........music
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rtgirl08 Need some advice
Hey everyone! My name is Emily and I'm 22 years old and new to this group. I was diagnosed with JME when I was 16 and was seizure free for 4 years so they took me off my meds and I was seizure free for almost three years until today. I was on my way...
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 mommy2... |
 cittauk Jan needs help urgently
I have had a very worrying email from Jan, a special lady who is a member of this site. Her user name is ROCKNROLL. I am extremely worried, she lives alone and it is very clear in her email that she is in a desperate situation in need of medical attention....
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 Colina Has anyone heard from?
Hi there friends!
I started this discussion because many times I wonder about members/friends who just seem to have dissapeared. Usualy there is one person out there who knows how they are doing and can pass on a message.
People do come and...
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epi_help why not post some different topics
Why not post some different topics, such as puberty, catamenial seizures menopause, pregnancy, parenting, relationships, managing stress, women'shealth etc... then it will encourage to post experiences on these different topics and we can add links to content...
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 JayBri... Introduce Yourself
I just thought we might want to inroduce ourselves, so if you feel like it, here's the place to do it! I'll start.
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 kacierees Am I alone?
Well where do I start... my fiance has epilepsy and it is all so new and scary to me.
We met a little over three years ago, in college. Everything was moving along perfectly. I graduated and began teaching and coaching while he finished up his...
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spiz The Guilt
The overwhelming guilt of depression. The guilt that pierces your heart with any mention of anything left undone, unsaid or unthought of on your part. The house that SHOULD have been cleaned, the laundry that SHOULD have been done, the meal that SHOULD have...
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spiz |
YeeP Hello all!
I am new here. I found the page looking up side effects of the meds I am on. I did think it was cool that there was just a "Temporal Lobe" group and was excited to join. Ill be checking back.
Thanks!
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YeeP Hello all!
I am new here. I found the page looking up side effects of the meds I am on. I did think it was cool that there was just a "Temporal Lobe" group and was excited to join. Ill be checking back.
Thanks!
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senecasam Product Idea - Need technical assistance
I'd like to hear from someone with technical knowledge/experience in automobile ignition systems regarding an idea I have.
I'll check back here for responses.
Thank you.
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 dfazg |
warren7 Commercial & Research Initiatives: Actigraphy - Wikipedia Entry and Four Actigraphs
Courtesy of Greg Barkley, I have reviewed the wikipedia entry on actigraphy (http://en.wikipedia.org/wiki/Actigraphy).
Actigraphy is defined by Wikipedia as a "relatively non-invasive method of monitoring human rest/activity cycles." Motor activity is...
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