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All Groups

  Discussions Members
Group
Anti-epilepsy treatments: What's new?
Created by Presidentat3/31/08 - 2:02 pm
Pipeline Group discussion on new developments in epilepsy treatments (including drugs, devices, gene therapies, etc.), and their potential to reach patients soon.
PUBLIC

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Antiepileptic Drug Screening
Created by Presidentat12/7/07 - 3:38 pm
Discussion of preclinical models for screening potential antiepilepsy therapies
PUBLIC

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8

Arts And Photography Support Epilepsy
Created by G_Abyat7/5/08 - 9:01 am
Creat art, take a picture, is the best therapy for epilepsy
PUBLIC

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8

Group
Benign Rolandic Epilepsy - to medicate or not?
Created by ursastat11/28/07 - 4:07 pm
BRE
PUBLIC

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Group
Bugs Today: epilepsy.com Website Feedback and Architects Group
Created by warren7at11/15/07 - 11:57 am
Provide feedback and new ideas to make epilepsy.com a more effective resource
PUBLIC

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Group
New - Can't Stop Them!!!
Created by Amber28at8/24/08 - 3:45 pm
Help!!!
PUBLIC

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3

Chanda's Group
Created by Chanda...at11/10/07 - 3:43 pm
The group discussion is up to you!
PUBLIC

1

11

Children of a Parent with Epilepsy
Created by emirahsat6/19/08 - 9:10 pm
From the point of view of a family member
PUBLIC

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6

Group
Coming Out of the Shadows
Created by ronbat3/28/08 - 2:59 pm
Using Epilepsy to Break Free
PUBLIC

2

6

Community Mentors
Created by epi_helpat11/11/07 - 2:21 pm
A group of community members interested in being volunteer moderators and mentors to users of my.epilepsy.com
PRIVATE

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baby
New - Conceiving with epilepsy
Created by cukinhaat8/18/08 - 10:51 am
Group for all the women who wants to have childreen
PUBLIC

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Group
Dating and Epilepsy
Created by Pixied...at11/29/07 - 5:56 pm
Men and Women ages 25 to 40 who live with epilepsy every day of their lives and are strong enough to survive
PUBLIC

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Group
Dealing with life and what ever!
Created by memtat11/10/07 - 4:36 pm
life and what ever
PUBLIC

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Group
Epi-teens
Created by Epi-Teenat5/4/08 - 2:57 pm
A Group for teens living with Epilepsy to share their experiences with others, and share advice with others
PRIVATE

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Epilepsy due to Viral Encephalitis (an Acquired Brain Injury~ABI~)
Created by ValNew...at1/11/08 - 7:05 am
Epilepsy due to Viral Encephalitis
PUBLIC

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7

Epilepsy Innovation Summit May 2008
Created by warren7at5/13/08 - 7:08 pm
Notes and Discussions Inspired by the May 7, 2008 Epilepsy Innovation Summit in Boston sponsored by CIMIT and NIO
PUBLIC

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Group
New - Epilepsy/any topic
Created by TomII1000at9/4/08 - 7:11 pm
Yes
PUBLIC

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Experiences with Simple Partial Seizures
Created by JayBri...at2/23/08 - 12:45 am
This group is for people to share their experiences with simple partial seizures with others.
PUBLIC

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FACES Pediatric Subcommittee
Created by Cindy ...at5/1/08 - 11:42 am
Discussion forum for the FACES Subcommittee
PRIVATE

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4

Group
Frontal Lobe Epilepsy
Created by criskrisat11/16/07 - 4:29 pm
A Group for Discussions Associated with Epilepsy focused in the Frontal Lobe
PUBLIC

5

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Group
Husbands and Wives and questions
Created by Hisgraceat2/24/08 - 5:07 am
Spouses dealing with each other and their symptoms
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Group
Infantile Spasms or West Syndrome
Created by stanleyrat1/28/08 - 11:57 am
Infantile Spasms
PRIVATE

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Group
juevenile myo-clonic epilepesy group
Created by jmeat7/3/08 - 5:49 pm
Who has juevenile myo-clonic epilepesy
PRIVATE

0

5

Karl's group
Created by karl34at11/11/07 - 5:03 am
Dealing with frustrations
PUBLIC

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4

Group
katelins group
Created by katelinat12/29/07 - 9:47 pm
before and after surgery in LA and Ventura county CALIF
PUBLIC

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3

Group
Lamictal
Created by Foxyfo...at2/29/08 - 2:07 pm
Daughter will be starting Lamictal and I need to hear of your experience with it.
PUBLIC

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Group
Laughter The Best Medicine
Created by rebaat11/13/07 - 10:21 am
Relieving the stress of everyday life through laughter
PUBLIC

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Group
LGS Foundation
Created by LGS Fo...at12/17/07 - 10:28 am
Lennox-Gastaut Syndrome Foundation
PUBLIC

2

6

Living a life with Epilepsy
Created by kjcana...at11/18/07 - 9:13 pm
A place where people can come and talk about how they deal with their life on a day to day basis with Epilepsy
PUBLIC

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55

living with epilepsy and ASD....autistic spectrum disorder
Created by sophia...at4/28/08 - 5:53 am
this is a happy friendly group to talk about living with A.D.H.D/ADD, Rett syndrome OR Aspergers syndrome this is for anyone who you know has got any of these conditions
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Group
Miss Diagnosed
Created by annerut01at2/10/08 - 7:55 am
Teachers thought ADD my doctor thought differently
PUBLIC

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4

Mormons Living With Epilepsy
Created by mormon...at4/13/08 - 11:16 pm
This is where members of the Mormon faith can talk about how their faith in God and living in the Church has helped them deal with their epilepsy.
PRIVATE

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5

Group
Music Group
Created by IRobotat3/26/08 - 1:19 pm
A group for musicians and music lovers
PUBLIC

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Group
My precious daughter has seizures
Created by AMbi071at12/17/07 - 10:13 pm
Love, Care, Tears, and Fears
PUBLIC

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Group
NEW PARENTS
Created by angela...at12/14/07 - 11:59 am
partials seizures
PUBLIC

1

10

Northern Virgina Support Group
Created by Beryat5/11/08 - 5:22 am
Looking for people in Northern Virginia (Parents/siblings/Patients) looking for Support Groups
PUBLIC

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5

O' Yeah Canada
Created by Godiva...at11/11/07 - 4:58 am
A place for people in Canada to sort out medications, insurance, driving laws & more.....every where seems to be different
PUBLIC

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8

Old timers
Created by Colinaat12/18/07 - 10:44 am
A group of members who've been around a long time and have a lot of experience to offer.
PUBLIC

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Pacific NW USA
Created by middlemanat4/21/08 - 1:28 pm
A place for people with epilepsy that live in AK, WA, OR, ID, or MT USA
PUBLIC

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Group
New - Parents Of Children With Epilepsy
Created by zachsm...at8/31/08 - 1:56 pm
A group for parents with children that have epilepsy
PUBLIC

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Group
Practical Living with Epilepsy Catalogue Project
Created by warren7at11/15/07 - 10:44 am
A project to create a catalogue of products for safer living with epilepsy
PUBLIC

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Readers Group
Created by Readergalat12/31/07 - 10:32 pm
Book club with group readings and discussions of books.
PUBLIC

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Research Group
Created by spizat2/2/08 - 2:46 am
Researching Epilepsy
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Group
Sample Group - Have a look at what you can do!
Created by etpweb...at11/10/07 - 6:45 pm
This Group has been started to provide and example of the new Groups feature and has links to the Help Section.
PUBLIC

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6

Seizures + Weight Loss Surgery
Created by meltin...at5/15/08 - 5:46 am
Have you had WLS or are you planning it?
PUBLIC

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Group
Seizures after Weight Loss Surgery
Created by meltin...at7/26/08 - 1:31 pm
Are you having seizures after your weight loss surgery? Join us!
PUBLIC

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1

Helen Keller and her pit bull
Service Animals, Therapy Animals, and Pets
Created by Vallie...at11/20/07 - 4:06 pm
A group for those who rely on the human-animal bond to get them through the day.
PUBLIC

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Group
Sports
Created by IRobotat6/12/08 - 11:39 am
A group for atletes and people who like watching sports
PUBLIC

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Group
Spousal support group
Created by jm2jmmat12/31/07 - 10:40 pm
to learn more about how others support spouses w seizure disorders , common experiences, offer help + hope
PUBLIC

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Group
Struggling after surgery
Created by mommy2...at12/8/07 - 11:20 am
Those who've undergone seizure surgery and face a variety of struggles

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