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UPDATED: Tue, 07/01/2008 - 8:58am
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My.epilepsy.com Community
Welcome to epilepsy.com!
Whether you are an epilepsy patient or a family member or friend of a patient, we invite you to look around and enjoy the many new features we've built for you.
Each month, epilepsy.com’s newsletter, Spotlight, is bursting with recent epilepsy news, updates on seizure medicines, and advances in treatment options, and new features on epilepsy.com. It is a vital way to keep subscribers updated with the latest news and information available.
With your epilepsy.com registration, you have access to the my.epilepsy.com Community, which offers:
- your own Seizure Diary
- Forums
- Groups
- Blogs
- Chat
- a Community Calendar
- and more
Getting started is easy, and our Help Center will get you there faster! Just use the links to the left to learn about each section and how to participate.
Whatever your interest, we welcome you, and hope you will be at home in the epilepsy.com Community.
Featured Video
Diagnόstico: Epilepsia ... y ahora, ¿qué?
- Spotlight on epilepsy.com Groups!
- Spotlight on epilepsy.com Groups!
- A Physician-Driven Idea to Help People with Epilepsy Seeking Employment
- Navigating the Changes in Our Epilepsy.com Re-Design
- Warren Lammert Honored at NYU by FACES, Finding a Cure for Epilepsy and Seizures
- L. A. Turntable Celebrity, DJ Hapa, Epilepsy Therapy Project Spokesperson Leading Our Team at the National Walk for Epilepsy
| Title | Posted | |
|---|---|---|
| Resources for VNS Therapy | Mar 26, 2008 | |
| epi_help | ||
| What are the unmet medical and social needs of people with epilepsy? | Apr 8, 2008 | |
| epi_help | ||
| Ted Kennedy had a seizure today and I think this is our opportunity | May 25, 2008 | |
| Orien2 | ||
| Chat issues and responding to seizures | Apr 21, 2008 | |
| epi_help | ||
| My 15 yr.old has had 3 tonic clonics in the last 6 months | Jun 6, 2008 | |
| HBsmom | ||
| Helpers for QA Chats | Apr 18, 2008 | |
| epi_help | ||
| Anyone with similar situation - PLEASE HELP | Jun 24, 2008 | |
| Nuno Pedrosa | ||
| Question for VNS patients: Should I be concerned? | Jun 9, 2008 | |
| suebear | ||
| Help and advice...pain a week after wada | Jun 20, 2008 | |
| SassyMindy | ||
| new diagnosis for my husband, need feedback | Apr 25, 2008 | |
| D Doherty | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| New and Over 50 | Jul 4, 2008 | |
| mysticalgeni | ||
| Is it actually working???? | Jul 4, 2008 | |
| JinLondon | ||
| 3year old with Myoclonic Seizures | Jul 4, 2008 | |
| CC Ann | ||
| Varying forms of tonic clonic seizures! | Jul 4, 2008 | |
| ibble | ||
| Ahem! Shooting Silvery Spots - Turned to shooting headaches | Jul 3, 2008 | |
| Greenwoodpixie | ||
| Are my seizures really that serious? | Jul 3, 2008 | |
| rwolfe | ||
| How do I harden up to this? | Jul 3, 2008 | |
| Kathy781 | ||
| Struggling to gain control | Jul 3, 2008 | |
| latinmermaid27 | ||
| VNS implant | Jul 3, 2008 | |
| The_Dreded_King | ||
| VNS has changed my life | Jul 3, 2008 | |
| desert_rose73 | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,189 | |
| epi_help | ||
| topamax and weight loss | 18,735 | |
| alexia mom | ||
| kepra | 18,483 | |
| brian mattingly | ||
| Possible cure for absence seizures | 15,336 | |
| pdl1 | ||
| Epilepsy and marijuana | 14,224 | |
| cjad234 | ||
| Sexual Side Effects | 12,309 | |
| George R | ||
| How exactly do aura's feel | 12,089 | |
| WendyBendy | ||
| MEDICAL ALERT I.D.'s | 11,031 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 9,802 | |
| spiz | ||
| electrical shock in head? | 9,252 | |
| Maggie | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| VNS Therapy | Apr 9, 2008 | |
| cdytmire | ||
| Epilepsy (LGS & APS) Survey | Jun 3, 2008 | |
| HealthResearcher | ||
| News Headline: Local implant could buzz sufferers and beat seizures | Jun 17, 2008 | |
| seizure free | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Dementia?? | Jul 4, 2008 | |
| crashllama | ||
| Me + Epilepsy = hate. | Jul 4, 2008 | |
| meganann0404 | ||
| Emergency VEEG | Jul 3, 2008 | |
| kaitlynsmom | ||
| Counting THe Days On One Hand | Jul 3, 2008 | |
| SassyMindy | ||
| Independence Day.... boy that say's it all... | Jul 3, 2008 | |
| phunn | ||
| Seizures and Technology | Jul 3, 2008 | |
| crashllama | ||
| Good week | Jul 3, 2008 | |
| ABraden7 | ||
| EEG | Jul 3, 2008 | |
| kroiz | ||
| Frustrated | Jul 3, 2008 | |
| Sophs64833 | ||
| Technology and New Epilepsy Therapies | Jul 2, 2008 | |
| stevenschachter | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| Inspirational Quote - My Own Personal Inner Thoughts | 7,905 | |
| Butterflygrl | ||
| my partial complex seizures | 3,815 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,582 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,438 | |
| JudiS | ||
| side effects of phenobarb. | 2,933 | |
| pksmom | ||
| Feeling Sick | 2,763 | |
| JBJ1984 | ||
| Tegretol XR and ANXIETY meds | 2,709 | |
| Butterflygrl | ||
| How can you tell if a sleep seizure happens? | 2,582 | |
| epl_controller | ||
| Nonepileptic "Events" vs. "Seizures" | 2,514 | |
| teft | ||
| TYLENOL, AEDs & SEIZURES | 2,494 | |
| cmscribbles | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Bugs Today: epilepsy.com Website Feedback and Architects Group | Apr 15, 2008 | |
| warren7 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| juevenile myo-clonic epilepesy group | Jul 3, 2008 | |
| jme | ||
| Children of a Parent with Epilepsy | Jun 19, 2008 | |
| emirahs | ||
| Sports | Jun 12, 2008 | |
| IRobot | ||
| Seizures + Weight Loss Surgery | May 15, 2008 | |
| meltingmama | ||
| Epilepsy Innovation Summit May 2008 | May 13, 2008 | |
| warren7 | ||
| Northern Virgina Support Group | May 11, 2008 | |
| Bery | ||
| Epi-teens | May 4, 2008 | |
| Epi-Teen | ||
| FACES Pediatric Subcommittee | May 1, 2008 | |
| Cindy Whiteside Hammerquist | ||
| living with epilepsy and ASD....autistic spectrum disorder | Apr 28, 2008 | |
| sophia_hill | ||
| Pacific NW USA | Apr 21, 2008 | |
| middleman | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| STILETTO | May 20, 2008 | |
| STILETTO | ||
| View all Stories | ||
| Title | Posted | |
|---|---|---|
| Sharron's story | Jul 3, 2008 | |
| Sharron307 | ||
| greek to me | Jul 3, 2008 | |
| nisemd | ||
| High school | Jul 3, 2008 | |
| denisse | ||
| what happened | Jul 3, 2008 | |
| jme | ||
| A vitamin that has stopped my seizures | Jul 3, 2008 | |
| ccrooks | ||
| Epilepsy Since Childhood (age6) now (32) | Jul 2, 2008 | |
| AZMATT | ||
| Diagnosed at 5 years old | Jul 2, 2008 | |
| BeigerR | ||
| My Story | Jul 2, 2008 | |
| xanadu0410 | ||
| denial | Jun 30, 2008 | |
| usborn | ||
| Dilly's Story | Jun 30, 2008 | |
| dillydally | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 979 | |
| kroiz | ||
| Seizure Cat! | 457 | |
| wenko | ||
| my story | 425 | |
| snoby | ||
| Kelly's Life With Epilepsy | 364 | |
| kjcanada1979 | ||
| Always Have On Clean Underwear | 353 | |
| crashllama | ||
| What My Seizures Are Like...... | 334 | |
| javaman | ||
| my brain has died a thousand deaths........... | 317 | |
| banffgirl | ||
| Crystal's story | 279 | |
| Crystal11 | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 276 | |
| karalyeva | ||
| How I found out I hade seizures | 271 | |
| HilaryWeinberg | ||
| View all Stories | ||
if you (your loved one) had more seizures after an appropriate try of the first seizure medicine, did a doctor tell you
To live with it
9% (5 votes)
To try a new medicine for seizures
74% (42 votes)
To see another doctor who specializes more in epilepsy
14% (8 votes)
Not sure or don’t remember
0% (0 votes)
Other
4% (2 votes)
Total votes: 57
(Note: You must log in or register to participate in this poll.)
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