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Resource Specialist

Need help in answering your questions about epilepsy? Read responses to the most frequent questions posed by our community or see answers to topics that interest you. Not seeing an answer to your question? Join this moderated forum where you can ask our epilepsy resource specialist questions dealing with epilepsy. We select questions of greatest interest and educational value to all our readers. We encourage you to contact your own health care provider for individual medical advice. We cannot provide second opinions or make specific recommendations regarding therapy.

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Alissa...
Alissa...
New - How do I know if my child's behavior is "normal" for his age?
Created by Alissa...at6/13/08 - 8:46 am
Answered by epi_helpat6/27/08 - 7:48 pm
I have a 4-year old son who was diagnosed with complex partial seizures when he was 2 years old.  For the past 8 months, his seizures seem to have been controlled by Trileptal, but now he is having brief seconds where he "feels yucky" in his head. ...
kslone
kslone
New - PLEASE HELP! Daughter's Abdominal pain caused by Zarontin?
Created by ksloneat6/27/08 - 8:31 am
Answered by epi_helpat6/27/08 - 7:03 pm
My Daughter started Zarontin (the generic form, anyway) back in February this year. Please help! My daughter has been having abdominal pain and soft stools and will hardly eat anything. (for two weeks) and the last few days her abdominal pain is almost...
MSCORR...
MSCORR...
New - SO, NOW THAT I AM "SEIZURE-FREE" ON DILANTIN...
Created by MSCORR...at6/15/08 - 7:49 pm
Answered by epi_helpat6/24/08 - 11:05 am
HOW DO I GET INTO A CLINICAL RESEARCH TRIAL (KEEPING IN MIND THAT DUE TO THIS ILLNESS AND MIS-DIAGNOSIS AS A CHILD, I AM NOW BROKE, HOMELESS, AND ON SOCIAL SECURITY DISABILITY INCOME DUE TO "PSYCHIATRIC" REASONS?
The_Dr...
The_Dr...
New - what is going to happen?
Created by The_Dr...at6/22/08 - 1:56 pm
Answered by epi_helpat6/24/08 - 10:43 am
on july 9 I'm going to get a VNS implant put in. I was wondering if anyone could tell Me what I should Be expecting to happen and what to look out for after I get the implant in. cause the nuerosurgen told Me that they are going to turn the implant...
csdon
csdon
New - Urgent Advice
Created by csdonat6/17/08 - 5:36 am
Answered by epi_helpat6/18/08 - 7:50 pm
To the doctor concerned: My name is Claudia, I live in South Africa, and was diagnosed with frontal lobe epilepsy after a viral encephalitis in 2007. I was subsequently put onto Lamictin 125mg x2 daily. We were on holiday recently and I happened to...
wntr89
wntr89
My doctor is adding Keppra for seizures in addition to depakote?
Created by wntr89at5/21/08 - 8:04 am
Answered by epi_helpat6/2/08 - 6:59 am
denie
denie
Thickened Cortex
Created by denieat5/21/08 - 12:31 pm
Answered by epi_helpat6/2/08 - 6:47 am
I'm new to this website and have no idea what I'm doing so any insight on how to find more info on my case would be great.  Thickened Cortex on MRI?  I've had E (complex partial) for 10 yrs, starting when I was 24.  My neuro at the time sent me for an EEG,...
Birdie
Birdie
Birdie
Created by Birdieat5/21/08 - 3:55 pm
Answered by epi_helpat6/2/08 - 6:24 am
Do you have a video or pamplet that shows what Video Telemetry is?  I've been Epileptic for 48 yrs., and have never heard of it.                              thebirdie@centurytel.net
kroiz
kroiz
infant seizures
Created by kroizat5/26/08 - 11:11 am
Answered by epi_helpat6/2/08 - 6:08 am
My 4 month old has been having seizures since birth.  They are usually tonic-clonic, lasting 2-4 minutes in a series of 2 or 3.  Sometimes she has absence seizures, also in a series of 2 or 3.  she has 3-4 of these episodes a month. This is something new....
Lee050...
Lee050...
LOC & laughing
Created by Lee050...at5/22/08 - 1:04 am
Answered by epi_helpat6/2/08 - 5:57 am
Recently, when I laush A LOT, I lose consciousness, somewhat.  I wonder if this might be a type of seizure - something I have not had in 20 years (whe nI was 3 years post TBI).  Lee
forev25
forev25
Side effects from lamictal
Created by forev25at5/26/08 - 8:13 pm
Answered by epi_helpat5/30/08 - 7:15 pm
amy bo...
amy bo...
Surgery w/ hemophilia
Created by amy bo...at5/18/08 - 7:35 pm
Answered by epi_helpat5/19/08 - 5:16 am
Hello! My 6 yr old son has severe Hemophilia & Epilepsy. The docs are now discussing surgery as one of the options,any info on these two? Thank you, Amy
pixie_mu
pixie_mu
When is it no longer febrile seizures?
Created by pixie_muat5/10/08 - 8:28 am
Answered by epi_helpat5/13/08 - 8:19 pm
My son is 4 now. He had his first febrile seizure when he was about 11 months old. He had his second a year later. Then he didn't have another one for a year and a half. Now, he had 4 in 6 months time. (This brings the total to 6 seizures, all with a fever.)
ceola
ceola
help va.
Created by ceolaat5/12/08 - 8:34 am
Answered by epi_helpat5/13/08 - 8:01 pm
hello,is feeling faint almost going down extremly weak just brief? can seizus play with your emotions?and when I has eeg sleepdeprived the wire attachec tojust below color bone was firey red the attened was conecerned as well as I she ask did I have sensitive...
confus...
confus...
Amusement Parks
Created by confus...at4/21/08 - 9:31 am
Answered by epi_helpat4/25/08 - 5:36 am
My 14 year old daughter was diagnosed about 8 months ago with JME. She was put on Keppra and had a breakthrough grand mal seizure. After a video eeg, the doctor determined that she wasn't responding the Keppra and we started to put her on Lamictal with the...
redted...
redted...
vns and autism
Created by redted...at4/24/08 - 10:53 pm
Answered by epi_helpat4/25/08 - 5:03 am
My son has PDD (an autism spectrum disorder) and still has a breakthrough seizure about every 2-3 weeks after being on Keppra, Lamictal, and Zonisamide now at their maximum dosages...he is 19 years old...the Dr. says he has not had anyone with autism get a...
kenster1
kenster1
Diagnosed with Psychogenic seizures
Created by kenster1at4/12/08 - 8:47 am
Answered by epi_helpat4/14/08 - 10:39 am
Kaye
Kaye
Petechiae
Created by Kayeat4/14/08 - 4:36 am
Answered by epi_helpat4/14/08 - 9:51 am
Hi, My son developed tonic/clonic seizures at 15 and when he went to uni at 18 he took himself off all medication. Now 22 and in his last few months at uni, he has had two seizures in his sleep within a month. He's started taking Eipilim again but it obviously...
Rosiem...
Rosiem...
Down-side of Surgery?
Created by Rosiem...at3/28/08 - 10:37 am
Answered by epi_helpat3/29/08 - 6:21 pm
  Hi,   I'm contemplating brain surgery (reluctantly) with no job experience, no education (thrown out of 9th grade due to seizures).    I've heard several good sides but have also heard several bad about having it at age 42.   What are...
Denaya 21
Denaya 21
any thing out there
Created by Denaya 21at3/22/08 - 11:54 am
Answered by epi_helpat3/24/08 - 8:16 pm
i have epilepsy and i have to kids some time befor i have my seizures i feel bad and then they come .some are big ones and some are not is there soming thing out there like a ring or some thing that can let you know you are going to have one or to let you...
Mark C...
Mark C...
Stopped taken mysolin
Created by Mark C...at3/10/08 - 1:33 pm
Answered by epi_helpat3/16/08 - 8:20 pm
I had been taking dylintin and mysoline to control my petite mal sizures for 33 years. I now live in  Latin American and was told that mysoline was no longer available.  I stopped taking mysoline about 9 months ago. I have had no seizure issues within...
Kellydoug
Kellydoug
Husband Refusing to Stop Driving
Created by Kellydougat3/11/08 - 3:55 am
Answered by epi_helpat3/16/08 - 8:09 pm
My husband has had 4 seizures over the past 10 years with 3 of them in the last 2 years.  The last one was a week and a half ago.  As with so many people, we have been trying to figure out the triggers.  In the meantime, he is pretty much required to drive...
Denaya 21
Denaya 21
what to do
Created by Denaya 21at3/11/08 - 1:56 pm
Answered by epi_helpat3/16/08 - 7:58 pm
i have to kid and one is 8m and the other is 4yrs and im24 i love my kids and will do any thing for them but about 2m ago  i was told i have epilepsy and i was passing out for a yr be for that .well i keep my kids most of the day even if im not feeling so...
brodie
brodie
comming down on ed stress
Created by brodieat3/13/08 - 10:10 am
Answered by epi_helpat3/16/08 - 7:39 pm
when it comes to community college and epilepsy,how far would you take things?seems seizures block pathways toward my goal,so far 48 credits though it took a couple years due to many problems to get this far.                how far would...
missb
missb
Dilantin and surgery
Created by missbat3/13/08 - 4:23 pm
Answered by epi_helpat3/16/08 - 7:23 pm
I need to know about Dilantin and having dental surgery.  I am scared to death because I read that Dilantin does not mix with a lot of things, so I'm worried about anesthesia.  Also, I read where valium should not be administered.  Is there anything that...

Questions
General Health and Women's Issues
Effects of seizures or treatment on general health, bone health, sexuality, pregnancy and menopause.
12
Finding Help
How to find or access help in the community, talking to health care providers and navigating systems.
19
Insurance Issues
Concerns and questions about insurance and medication coverage
2
Lifestyle and Stress Management
Managing lifestyle and stress to help seizure control and general well-being.
2
Managing Social Issues
Impact on family, relationships, work, leisure and independent living.
7
Medication Management
Information about medications, practical tips, memory aides and problems taking meds.
34
Open Forum
Your concerns, ideas, or questions!
5
Parents and Epilepsy
Parenting children with seizures or management issues for parents who have epilepsy.
13
Products and Resources for Epilepsy
Products, equipment, and resources for people with epilepsy, their loved ones and caregivers.
3
Safety Management
Safety concerns, seizure first aid, and ways to prevent or lessen risks.
2
Sorting Out Seizures
Questions about diagnostic testing or concerns.
44
Surgery, Devices and Other Treatments
Questions about surgery, devices, diet or other non-medical treatments.
9
Thinking, Learning, Mood, Behavior
Questions about effect of seizures and treatment on learning, mood and behavior.
7