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People Stories

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Share your story with friends, family and our community. Talk about your interests and experiences while sharing your photos and podcasts. Spread the word about your pages so other users can post guestbook entries, read your blog, and learn more about you! Customize your space however you wish! Begin creating your own Story by clicking the orange button below. Not ready yet? Use the links below to browse through others' Stories and learn more about your fellow epilepsy.com members! (Please note that any People Stories created on epilepsy.com prior to November 2007 can be found in the People Stories Archive.) Learn more in our People Stories Help Section.

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People Stories Index

 
Sharro...
Sharro...
New - Sharron's story
Created by Sharro...at7/3/08 - 11:18 pm|3 Views
I found my savior. Brain surgery has changed my life. Almost 16 months siezure free!!

nisemd
nisemd
New - greek to me
Created by nisemdat7/3/08 - 10:25 pm|1 View
Had two tonic/clonic seizures basically in the last week. Totally new and in denial

denisse
denisse
New - High school
Created by denisseat7/3/08 - 4:47 pm|11 Views
I been going with seizure almost ten years ever seen high school year

jme
jme
New - what happened
Created by jmeat7/3/08 - 4:23 pm|8 Views
I droped a soad and stood blank

ccrooks
ccrooks
New - A vitamin that has stopped my seizures
Created by ccrooksat7/3/08 - 10:01 am|7 Views
How vitamin B6 has stopped my seizures

AZMATT
AZMATT
New - Epilepsy Since Childhood (age6) now (32)
Created by AZMATTat7/2/08 - 3:34 pm|16 Views
Hi how are you . That word that people hate say and mostly, I a hate to spell.. I alway think how to you spell that?

BeigerR
BeigerR
New - Diagnosed at 5 years old
Created by BeigerRat7/2/08 - 12:05 pm|26 Views
Epilepsy for 17 years, and counting......

xanadu...
xanadu...
New - My Story
Created by xanadu...at7/2/08 - 10:25 am|11 Views
My history of epilepsy and heart disease and maintaining my health!

usborn
usborn
New - denial
Created by usbornat6/30/08 - 11:38 pm|26 Views
I,m the daughter, cousin, and mother of persons with epilepsy.

dillyd...
dillyd...
New - Dilly's Story
Created by dillyd...at6/30/08 - 1:26 pm|9 Views
Our daughter Dilly was only one year old when we noticed her having these blank staring spells that also included gulping,  her mouth pursed, she gets a a blueish/white tint around her eyes and mouth, and a look of utter fear and confusion.  She would claw...

Whipit21
Whipit21
New - Pregnant and living with Epilepsy for the first time together
Created by Whipit21at6/30/08 - 1:15 pm|6 Views
Pregnant with Epilepsy

megana...
megana...
New - My story as an Epileptic
Created by megana...at6/30/08 - 12:10 pm|20 Views
New Epileptic!

leaann
leaann
New - Mac story
Created by leaannat6/29/08 - 3:12 pm|11 Views
absence/petitmal/grandmal seizures

susara...
susara...
New - epilepsie
Created by susara...at6/28/08 - 2:01 pm|4 Views
het net op hou met asemhaal vir 20 secondes

shestness
shestness
New - Growing up with epilepsy
Created by shestnessat6/26/08 - 9:18 pm|8 Views
I'm a 17 yr old girl with epilepsy.  Life was already rough as a teen; mix in epilepsy, cerebral palsy, and erb's palsy and I think I want pull my hair out!

kalimist
kalimist
New - Epilepsy has ruined my daughters life
Created by kalimistat6/26/08 - 2:29 pm|22 Views
Amy was diagnosed with MCAD at the age of three and epilepsy at the age of 7.

Jean Wyie
Jean Wyie
New - vertigo epilepsy
Created by Jean Wyieat6/25/08 - 9:48 pm|2 Views
 have started getting vertigo seizures and didn't know what they were, and finally had an absence seizure while drivingI hav

mangom...
mangom...
New - New to this site
Created by mangom...at6/25/08 - 7:24 pm|61 Views
I just discovered this site tonight, and am very pleased to share and learn--have learnt a great deal in the last hour or so. Have been living and coping with Sz/E for the better part of 40 years; and have had many experiences--from the painful to the absurd.

may123
may123
New - i am having partail siezers.
Created by may123at6/25/08 - 5:07 pm|11 Views
hi my name is mary,i am 42 years old,i used to have grand male siezers when i was a child,then when i was 17 i stopped having them,

jordan926
jordan926
New - worried single mother has four year old with seizures and speech delay
Created by jordan926at6/25/08 - 5:05 pm|10 Views
 walking one summer morning august 2007, My son and i were walking at a medium pace. The sun was beaming and I felt my son stumble, over and over so I stop and gave him water. That's when he passed out ,I started crying oh my god what's wrong.

ajcunha
ajcunha
New - US Navy sailor diagnose with Epilepsy
Created by ajcunhaat6/25/08 - 1:36 pm|5 Views
Been diagnose with Eplipesy since 1986 with complex partial seizures.

jzetwick
jzetwick
New - Mom
Created by jzetwickat6/25/08 - 1:07 pm|3 Views
I am completely unfamiliar with epilepsy. When my son started having myoclonic seizures at 9 months. The news was devastating... of course. After a month on depakote he had a normal eeg and we were reassures that he had benign myoclonic epilepsy of infancy....

budkis
budkis
New - Gran Mal seizure and continuing intermittent black flashing rings
Created by budkisat6/24/08 - 9:52 am|6 Views
Concerned about flashing black rings

TERRY33
TERRY33
New - 292 MILES FOR EPILEPSY
Created by TERRY33at6/24/08 - 2:09 am|5 Views
                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                ...

steven...
steven...
New - Famous Shenzhen Hotels - InterContinental Hotel
Created by steven...at6/24/08 - 1:42 am|4 Views
Famous Shenzhen Hotels - InterContinental Hotel.

easydu...
easydu...
New - 19 years old Epileptic since 4
Created by easydu...at6/22/08 - 2:27 pm|6 Views
Wow!! what can I say that all you don't already know. It's challanging at times, but I'm healthy, strong, I enjoy life, have friends and family that loves me. I even have a car, that I hope someday (soon) i'll be able to drive a girl around.

pennyanne
pennyanne
New - my husband
Created by pennyanneat6/22/08 - 2:04 am|14 Views
hi there my name is penny and my husband name is richard

Joseph...
Joseph...
New - little hoss 81
Created by Joseph...at6/21/08 - 2:24 pm|9 Views
44 years young. Have had seizures 18 months of age

Gramcr...
Gramcr...
New - Honey, I think you had a seizure....I had a what??
Created by Gramcr...at6/21/08 - 5:54 am|22 Views
Nocturnal grand mal seizures with memory loss, confusion, aching muscles.  diagnosed at 24 years old and pregnant.  Although I think they may have started  in childhood and were not witnessed. 

safari
safari
New - Safari's wild ride
Created by safariat6/20/08 - 10:15 pm|9 Views
I'm a 47 year-old, elementary school teacher and mother of two. My first seizure was 14years ago. I have recently had two more in the past year.

Mercym...
Mercym...
New - Living with Myoclonic Epilepsy
Created by Mercym...at6/20/08 - 6:46 pm|36 Views
Faced with a life threatening condition that will not overpower me.

ca
ca
New - does anybody else have these feelings
Created by caat6/20/08 - 7:52 am|17 Views
Dej a vu

Theres...
Theres...
New - I hate epilepsy
Created by Theres...at6/19/08 - 6:00 pm|14 Views
I have had seizures for 10 years since a car accident. I am on Dialitin 600mg a day and it is killing my mood and my sleep. I am looking for some people to relate too. I have lost a baby, dislocated my shoulder. and about chewed my tounge off more then once....

bksutton
bksutton
New - Not Night Terrors
Created by bksuttonat6/19/08 - 7:15 am|19 Views
Our daughter probably went undiagnosed for 2 years before we realized what we thought were night terrors were seizures.

missyk...
missyk...
New - Melissa Christine, in the struggle
Created by missyk...at6/19/08 - 3:47 am|27 Views
400 mg topomax daily, 1 mg klonpin daily. 31 years old. diagnosed 3 years ago. i work as an adult entertainer on night shift. i suffer from nighttime seizures. i have a very hard time sleeping and have dealt with addictions to soma, ultram, lortab, oxycontin,...

26481802
26481802
New - Do You Know About Replica Watches?
Created by 26481802at6/19/08 - 12:30 am|7 Views
replicas watches is popular

grandv...
grandv...
New - Siezing the moment
Created by grandv...at6/18/08 - 11:32 pm|8 Views
Seizures began in 1968 at age 12. medications were valium, phenobarbitol, dilantin, and others. Problems included social rejection, educational impairments, disabling medication side-effects, job discriminations---even with an education.  

Everet...
Everet...
New - Life Support for People with Epilepsy
Created by Everet...at6/18/08 - 5:03 pm|15 Views
Recently discovered daughter (20 yrs old) has Epilepsy. September of 2008, she turns 21 yrs old and is not covered by my health insurance. She just had her second attack and am waiting for doctor's analysis as to whether she can still drive a car, thus keeping...

vdebler
vdebler
New - Daniel's Story
Created by vdeblerat6/18/08 - 11:54 am|15 Views
Daniel's jouney began when he was 7 weeks old and caught rotavirus, he began having seizures 2 days later...

abl126
abl126
New - Peace of Mind with Epilepsy
Created by abl126at6/18/08 - 7:31 am|10 Views
We were searching for extra protection for our daughter's night time seizures. It is scary not knowing if she was going to have one or not. Worse, if she were to have one and we would miss it. We found an answer.

lynett...
lynett...
New - Car accident with head trauma led to my epilepsy
Created by lynett...at6/17/08 - 2:53 pm|6 Views
I have been diagnosed with epilepsy since I was 18 and I am now 25. It has been kind of a setback for me because I don't know how to drive a car and when I apply for a job I seem to get overly discriminated because of it. My seizures usually come when I am...

CBack8...
CBack8...
New - My Story
Created by CBack8...at6/16/08 - 12:16 pm|12 Views
My seizures began on 5-12-2008. The next one was on 5-22-2008. They were almost every day from that point on.

TaraJa...
TaraJa...
New - Cassie
Created by TaraJa...at6/16/08 - 11:34 am|10 Views
My Daughter developed epilepsy at 11yrs old.

AVM
AVM
New - NIH Horror story !!
Created by AVMat6/16/08 - 10:05 am|36 Views
Always get 2nd opinions...Don't trust Doctors at the NINDS!!

lcsmall
lcsmall
New - It's Not So Bad
Created by lcsmallat6/15/08 - 11:48 pm|5 Views
I have had seizures since I was 4 years old, I am now 45.  Yes I have been through quite a lot but with the help of my friends and family, I have led a pretty normal life. It's not so bad.

zoe123
zoe123
New - A Greek to Remember
Created by zoe123at6/15/08 - 7:39 pm|5 Views
A Greek to Remember  

Lauren...
Lauren...
New - i thought it happened to everyone
Created by Lauren...at6/15/08 - 4:30 pm|31 Views
This is the story of how my family and I came to learn that I have juvenile myoclonic epilepsy. The steps we have taken to make the correct diagnoses. The medications. And how I am dealing with it now.

PJKozma
PJKozma
New - Paul
Created by PJKozmaat6/15/08 - 2:09 pm|8 Views
Contracted epilepsy in late 40's. No visible head trama, assumed genetic.  Undiagnosed for 10 years while having auras.  Doctors associated auras to tiredness, jet lag, stress, vertigo and inner ear imbalance.

lil_co...
lil_co...
New - MY 4 MONTH OLD
Created by lil_co...at6/14/08 - 7:59 am|11 Views
MY 4 MONTH OLD HAS PARTIAL EPILEPSY

fraser
fraser
New - Jaydin 's story
Created by fraserat6/13/08 - 1:53 pm|6 Views
Jaydin was born prem on 26 weeks. Grade 4 brain bleeding, 2 VP shunts, gastostomy feeding tube, blind, sereval palsy and Lennox-Gastaut Epilepsy


People Story Activity