Place Your Advertisement Here
 
UPDATED: Mon, 03/24/2008 - 12:57pm

  • Epilepsy First Aid
  • Seizure Medication
  • Animation of a Seizure
  • Seizure Diary
  • Find a Doctor
  • Epilepsy Centers
  • Clinical Trials
  • Event Calendar

Place Your Advertisement Here

Receiving Quality Epilepsy Care

This section provides information about quality measures that pertain to the following specific situations:

  • When First Diagnosed
  • After the Diagnosis
  • If Seizures Don’t Stop
  • If Medications Cause Side Effects
  • Questions for the Doctor
  • Just for Women

The particular quality measures discussed in this section come from a research project funded by the Centers for Disease Control, which was published in the journal Neurology in 2007.

The researchers sought to develop valid quality indicators for epilepsy care, focusing their assessment of quality on care within primary care and general neurology clinics. As stated in the abstract of their article, they reviewed existing national clinical guidelines and systematic reviews of the medical literature to develop an initial list of quality indicators. They supplemented the list with indicators derived from patient focus groups and convened a 10-member expert panel to rate the appropriateness, reliability, and necessity of each quality indicator. As a result of this process, the expert panel identified 24 evidence-based and 5 patient-based indicators as appropriate indicators of quality. Each of these indicators is included in this section, together with additional information to help put the quality indicators in context.

The researchers propose that these indicators could provide a basis to assess and improve the quality of care for persons with epilepsy who receive their care in primary care or general neurology settings. 

Topic Editor: Mary Jo V. Pugh, PhD, RN and Steven C. Schachter, MD.
Last Reviewed: 3/25/08


Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.

No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.



Title Posted
New and Over 50  
mysticalgeni
Is it actually working????  
JinLondon
3year old with Myoclonic Seizures  
CC Ann
Varying forms of tonic clonic seizures!  
ibble
Ahem! Shooting Silvery Spots - Turned to shooting headaches  
Greenwoodpixie
Are my seizures really that serious?  
rwolfe
How do I harden up to this?  
Kathy781
Struggling to gain control  
latinmermaid27
VNS implant  
The_Dreded_King
VNS has changed my life  
desert_rose73
View all Forums

Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
Epilepsy and marijuana  
cjad234
Sexual Side Effects  
George R
How exactly do aura's feel  
WendyBendy
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
View all Forums

Title Posted
Dementia??  
crashllama
Me + Epilepsy = hate.  
meganann0404
Emergency VEEG  
kaitlynsmom
Counting THe Days On One Hand  
SassyMindy
Independence Day.... boy that say's it all...  
phunn
Seizures and Technology  
crashllama
Good week  
ABraden7
EEG  
kroiz
Frustrated  
Sophs64833
Technology and New Epilepsy Therapies  
stevenschachter
View all Blogs

Title Page Views
Inspirational Quote - My Own Personal Inner Thoughts  
Butterflygrl
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
side effects of phenobarb.  
pksmom
Feeling Sick  
JBJ1984
Tegretol XR and ANXIETY meds  
Butterflygrl
How can you tell if a sleep seizure happens?  
epl_controller
Nonepileptic "Events" vs. "Seizures"  
teft
TYLENOL, AEDs & SEIZURES  
cmscribbles
View all Blogs

Title Posted
Sharron's story  
Sharron307
greek to me  
nisemd
High school  
denisse
what happened  
jme
A vitamin that has stopped my seizures  
ccrooks
Epilepsy Since Childhood (age6) now (32)  
AZMATT
Diagnosed at 5 years old  
BeigerR
My Story  
xanadu0410
denial  
usborn
Dilly's Story  
dillydally
View all Stories

Title Page Views
Jessica Roiz  
kroiz
Seizure Cat!  
wenko
my story  
snoby
Kelly's Life With Epilepsy  
kjcanada1979
Always Have On Clean Underwear  
crashllama
What My Seizures Are Like......  
javaman
my brain has died a thousand deaths...........  
banffgirl
Crystal's story  
Crystal11
Nocturnal grand mal seizures (primary generalized epilepsy)  
karalyeva
How I found out I hade seizures  
HilaryWeinberg
View all Stories

Place Your Advertisement Here

if you (your loved one) had more seizures after an appropriate try of the first seizure medicine, did a doctor tell you

To live with it
9% (5 votes)
To try a new medicine for seizures
74% (42 votes)
To see another doctor who specializes more in epilepsy
14% (8 votes)
Not sure or don’t remember
0% (0 votes)
Other
4% (2 votes)
Total votes: 57

View results
View past poll results